my test results came in and it’s not ASD - my experiences have some overlaps with ASD but also many crucial differences. however, testing was not a waste, it just yielded a different result that fits me a lot better than ASD and is going to be an absolute fucking nightmare of a search term
and you know what the fucking bullshit is they’re replacing it with a ~6 months free of a subscription to a third party captions provider~ which of course you’d have to pay for after those 6 months are up and you KNOW random youtuber #9039 isn’t going to bother to keep paying for that either because they won’t have the money or they just won’t care. and youtube’s going to act like that’s a perfectly fine alternative that won’t result in the majority of the site suddenly going from “more or less accessible” to “Fuck You If You’re Disabled”
“citing low usage” are you fucking kidding me nearly every worthwhile video i watch uses community captions. sometimes they’re kind of janky cuz they were made by some 14 year old who thought it’d be funny to put their own irrelevant jokes and commentary in there but that wasn’t a reason to ditch the feature entirely when its so useful and important
i’m not even hard of hearing and i rely on them to watch videos in other languages…this is literally how people have been making english subs for japanese songs and the like for years and it was great because you didn’t have to reupload the videos yourself and take away views from the original creators. many creators don’t allow reprints of their work whatsoever so if they go through with this (which unfortunately they seem pretty deadset on because lololol moneyyyyyy) it’s entirely likely that there just won’t be a way to watch that content with captions
there’s a petition to keep community captions…i don’t know if it’ll really do anything since they’re already going ~oh but we have Paid Alternatives!~ but don’t just let this pass by this should be a huge deal but i’ve barely seen anyone talking about it (not that i expect people to talk about things of any particular importance on tumblr but it’s not even getting attention on twitter beyond that one thread and like 2 other posts)
so like. sign this and shit don’t let youtube just actively get rid of accessibility features without anyone caring (though i’d say probably use twitter if you want to actually get their attention i don’t think they’d look here) http://chng.it/LN9HRNmnkg
This is also going to have a negative affect on people who watch videos in a foreign language since a lot of the subtitles in a language different from the video are community done captions too. Imagine how much harder it’ll be to watch most videos on youtube if you stuggle with English and now none of them are going to have subtitles for you.
I called quits on the essay at 8k words and then reread the question and it didn’t ask for an essay, they actually wanted the fifty word version of who in the family has ASD traits or other mental health issues
the “as a matter of fact my relatives do have ASD traits” document is now at 6.5k and still. not. done. also there is a surprise bonus 60 minute questionnaire but i am not doing that until i have processed the relatives info request
fun insights from both sides of the family include:
- a VERY high percentage of people who have moved to and lived in remote, rural or semi-rural locations for significant periods of time
- default “conversation” styles in a small variety of almost entirely one-sided flavours, including Reciting an Amusing Anecdote or Story, and the far less entertaining Talking At You Whether You Seem To Enjoy It Or Not (obvs I am one of the latter although I aspire to the former)
- catchphrases, signature repeated phrases spoken in specific exaggerated intonations
- exactly zero people with any degree of observable chill
Can anyone explain why this sucks so much. Like I thought I would love it because I don’t like social interaction and like being able to work in a way that actually helps me (ex: being able to listen to music) but it’s the worst thing so far and I’m not getting anything done.
@actslikeacat Most people with ADHD thrive on structure and compartmentalization, and with distance learning, that isn’t a thing. We’re in the same place for every class AND extracurricular, and there’s no physical transition to help our brains shift from one thing to the next. Basically, we’ve lost our anchor points and we can’t slow ourselves down or steer our brains in the directions we want them to go. Distance learning has introduced a legitimate accessibility barrier for a SIGNIFICANT portion of the population.
It’s not just structure - it’s EXTERNALLY IMPOSED structure. Trying to give ourselves structure is like trying to bail out the Titanic with a bucket. All the advice for studying/working from home right now is like ‘make sure you give yourself a schedule and stick to it’, and for a lot of us that is just not something we can *do*.
All the adderall in the world won’t help us stick to an internally motivated structure.
I’m not even in school anymore and this is a fucking mood. It’s just as hard to deal with as an adult and if anyone has any advice we’d really appreciate it.
adult autism assessment interview is like “do you do anything that other people describe as annoying” ummm yes but now that you are asking I am drawing a total blank on what those things are but they do exist I definitely annoy people
adult autism assessment follow up questions/background info to answer in my own time “do any of your relatives have mental health conditions or ASD attributes?” *spends entire day writing a 4.5k essay on exactly how each of my first and second order relatives annoy the fuck out of me and what their special interests are*
“In this critical time, when scarcity is a
reality, you see the hierarchy. Certain groups are valued over others.
This is the world that so many disabled and chronically ill people
already live in. Our lives are still seen as expendable.”
[image text: “The pandemic has brought about changes to accessibility for things that disabled people have been advocating for forever. You see artists streaming performances. You see people working remotely. When disabled people asked for those very reasonable accommodations, we’ve been told, “You can’t do that. It’s too hard.” Twice I was invited to be on a panel at South by Southwest, and each time I said, “I don’t travel. I want to do this via Skype.” Both times I was told no. “There are too many issues.” That was the excuse!”]
